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121 Care - Holiday Accomodation

121 Care provides support for people with a disability on the Sunshine Coast, South Burnett, Brisban [ ... ]

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Vale David Sullivan

I am sorry to advise that David Sullivan longtime committee member and past president of PwMS Vic Inc, and one of the longest serving MS Ambassadors, died peacefully in his sleep on Friday 13th January after an extended battle with cancer. David put a great deal of effort into the cause of people with MS and people with chronic disabilities. In addition to his work for  MS David was also a long term member of the executive committee of Australians for Disability and Diversity Employment. David was a truly gentle man and a close personal friend. He had lived with MS for nearly 30 years. He will be remembered as someone who put aside his own trials to focus on working for people with MS.
 
Nigel Caswell - President PwMS(Vic) Inc.

 

My name is Marcin Skoneczko (but I prefer to be called Martin, the English equivalent ;-). I am a 45 year old bloke from Poland, who was daring enough to move here in 2007 with my beautiful wife and two children. In short I was quite a successful business professional in Poland (worked in big international companies, established small company from scratch, which I have sold), but because I felt that something was not just right in that part of Europe, I made the decision, which was really not easy, but when I look at what is happening there, especially on the doorstep of Poland, in Ukraine, I can say that my feeling was not bad at all.

That’s enough about my resume ;-), the story about my MS is much more interesting. It began from my mum who had MS as well.  It was in the early 1980s and Poland had military state, no food, no drugs and very limited medical services.  After 6 years of battling she gave up, and committed suicide with success. For my brother and me, as young teenagers it was a shock. However, somehow we moved on, finished school, got jobs and established our own families. I trusted the doctors and believed that my brother and I would be fine.

Fast forward I was diagnosed with MS nearly 3 years ago with primary relapsing MS, currently on Tysabri and OMS diet. My kids are nearly the same age as we were such a terrible coincidence.  As a catholic person I believe that it is a message from GOD, be strong, survive and help other people to make it a good way.

We are lucky to live now in this very different country. I was lucky to come across the Dr. Jelinek book, an extraordinary similar life story.  We have met many wonderful and very helpful people (even from Centrelink, yes it is true ;-). All that gave me strength to move on I will not give up.  However I do not want to exuberate with my strength, I won’t climb mountains, I won’t swim the ocean alone. I want to live a modest simple life to appreciate each day with my family and friends.  I want to teach my kids about the first signals of this horrible disease. I want to give something back to that country and their people who were open enough to welcome us by working in PwMS-V.  

Marcin Skoneczko PwMS-V Committee Member

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