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Vale David Sullivan

I am sorry to advise that David Sullivan longtime committee member and past president of PwMS Vic Inc, and one of the longest serving MS Ambassadors, died peacefully in his sleep on Friday 13th January after an extended battle with cancer. David put a great deal of effort into the cause of people with MS and people with chronic disabilities. In addition to his work for  MS David was also a long term member of the executive committee of Australians for Disability and Diversity Employment. David was a truly gentle man and a close personal friend. He had lived with MS for nearly 30 years. He will be remembered as someone who put aside his own trials to focus on working for people with MS.
 
Nigel Caswell - President PwMS(Vic) Inc.

 

Nigel Caswell President 25pc  

 

 

 

 

 

Do you get what you want from appointments with your neurologist?

“My neurologist is my most important source of information about how to manage my multiple sclerosis, so it is essential I get maximum value out of my all-too-brief sessions with him”.

Neurologist appointments can be few and far between, and they can be over before you know it. Yet they can be crucial for the successful management of your MS, so it is essential you make the most of your appointment. This means being properly prepared and MSL has just launched a new tool to help you do just that: Preparing for your neurologist appointment checklist.

This has been developed with the support of the MS Advisory Council of Victoria, it tool provides practical advice for the day of your appointment; a checklist you can fill out; and a list of issues you might consider including for discussion.  You can also add notes to the checklist during or after your appointment and then keep it as a record.

I can see this checklist being of great value to anyone living with MS as an aid to getting the most out of their appointments and as ongoing record of discussion, symptoms and outcomes. MSL has indicated it will be supporting this new resource with a webinar very soon. And don’t forget MS Connect is also there to help you prepare for your appointment; you can get in touch with the MS Connect team on 1800 042 138, or via This email address is being protected from spambots. You need JavaScript enabled to view it..

How much thought do you give to your safety around your home?

Most falls happen at home, which is where we spend much of our time and tend to move around without thinking about our safety. If you are like me you are unsteady on our feet or need walking aids and we really should think about how we can make our homes safer

Is the lighting good enough? Do you have steps where a ramp would be safer or should install handrails or grab bars? Could you rearrange items you regularly use to make them easier to reach?

Some specific things you might think about are: Are there electric leads or cables which you may trip over? Are there loose rugs which may slip or ruck-up? Is your furniture arranged to provide plenty of room to move about? Does your bathroom have a non-slip floor? Are there steps without any handrails?

These are just a few things which could make your home a lot safer but perhaps the most important thing you should do is get advice from a professional, an occupational therapist, and you may well be entitled to advice from one, so why not ask your doctor to refer you or contact MS Connect on 1800 042 137, or via This email address is being protected from spambots. You need JavaScript enabled to view it..

Our annual conference is coming up

This year it will be held on Saturday May 6th at the MS Nerve Centre in Blackburn. As usual we have an excellent program which this year will feature Associate Professor Helmut Butzkeuven speaking about current and forthcoming treatments for MS and a question and answer session about the NDIS with speakers from MSL and people with MS who have personal experience of the NDIS.

So put the date in your diary and make sure you can attend but if you can’t attend then watch live on the internet the PwMS website www.pwms-v.org.au/

Nigel Caswell OAM - Feb 9 2017
  

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